I have been working with Dr. Camilleri at the Holtorf Medical Group for almost a year now, and I am writing to tell you that he is the best doctor I h...
I have been working with Dr. Camilleri at the Holtorf Medical Group for almost a year now, and I am writing to tell you that he is the best doctor I have worked with by far. In particular, I think he is the perfect doctor for women who have been through the school of hard knocks to finally discover and understand their thyroid, adrenal and sex hormone problems and want to be treated as partners with significant input into their treatment plans. He has the right knowledge and personality to work effectively with those of us who believe that we need to take responsibility for our health and manage our own care, tapping into the right experts for support along the way. Those of us who want to put two heads together to problem solve and experiment to find solutions that work-particularly when things digress from clear-cut textbook, which is certainly the case with me and almost all of the women I've run into via the Yahoo! groups for those with adrenal and rt3 issues, along with hypothyroidism.
I am 43 years old and have been sub-clinical hypo for perhaps most of my life (decades undiagnosed) with a pretty severe case of adrenal insufficiency that went over the edge in my late thirties. Like so many, I spent years searching for answers from doc to doc, therapy to therapy, only getting worse until I discovered, through my own research and reading, what was wrong with me and learned what would likely help. Thing is, I was having quite a time finding someone who agreed with me, never mind someone who would help me with appropriate treatment! I was told I was fine and to stop worrying a countless number of times; I was offered anti-depressants; I was told to see a psychiatrist; I was treated for all kinds of symptoms springing from the real problem, some of them making things worse. Finally, shortly after I crossed over into "alternative" medicine, I found someone who recognized and would treat my thyroid problem, but I did not respond well to treatment, and no one seemed to understand why. Again, I was seen as the problem.
I would feel great for a few days on Armour and then get worse and worse due to what I later learned (again, on my own) was completely drained adrenals, high rt3 and low ferritin. I finally got myself to a doc who would prescribe cortisol, and it helped considerably (although not "the" answer for me due to other problems like leaky gut, toxicity, nutritional deficiencies, etc.), but she didn't really listen to me, or at least I never felt truly heard; I could tell she was frustrated by my constant reports of reactions that were not typical or expected; and she did not want to work with my knowledge, intuition and preferences as part of the equation for treatment-she took this as a challenge to her expertise, I think, which was certainly not my intention.
Although on the right treatment path, I was so strung out and exhausted by the time I found Dr. Camilleri, and I was discouraged and frustrated at not having someone who understands all these issues to work WITH. Dealing with healthcare professionals had become another stressor for me that was seriously impacting the overall picture and my ability to "pull it together" to work productively toward better health.
Long story short, per our conversation, I could tell at my first appointment that Dr. Camilleri "got" Adrenal Insufficiency. When discussing my lack of success and strange reactions to things one would think would help, he used an analogy about tugging on the branches of a tree that is not rooted strongly in the ground. Boy did that resonate. I was literally walking around light-headed most of the time - supplements, any stress, even social interactions, would just throw me completely off so easily.
I had become a recluse, and I was hanging on by my fingernails, although you probably wouldn't know it to look at me. I hadn't been able to work at that point for 2 years, and I was seriously wondering if I was dying. I NEEDED someone to "get" me; give me credit for all I had learned through the school or hard knocks, as well as my own research; and work WITH me based on his clinical experience and deeper understanding of physiology and biochemistry. I got that from Dr. Camilleri, and it has been terrific.
He listens; he gives me relevant and helpful perspective based on his experience; he offers suggestions when needed that open up possibilities/paths for me; and he factors in what I think based on knowing my body and my history better than anyone, as well as knowing that I do my homework, and I have a brain - there is no ego getting in the way ever. This is relieving and refreshing.
He's also willing to try things based on what's actually happening with me symptom-wise vs. being married to lab results that simply don't cut it for optimal treatment sometimes. I've been to "top-notch" endocrinologists who would not prescribe glandular thyroid hormone for me base on my labs, never mind t3! I've been to a Stanford Hematologist who told me taking iron would be dangerous based on my labs - my ferritin at that point was 16, and I had many symptoms of iron deficiency, including intolerance to t3 with adrenals fully supported.
It's a scary, scary medical world out there for those of us with these issues that are relatively new to even "alternative" medicine and not even on the radar for conventional. Without self-education and taking charge of our own cases, we would be destined to live pitiful, sad, depressed lives in the gray area between the world of the living and the dead until we finally wither into non-existence. And that is not overly-dramatic.
I went from a high-achieving, social, productive person to someone barely able to function who often wished she'd just not wake up because there was no joy, and it was just too damn hard to get through the day. As much as the right diagnosis and treatment, women in my boat need a doctor who can connect with empathy and compassion as a human being, as well as someone with openness to new knowledge, respect for individuality and the ability to weave symptoms and even personal characteristics with the labs. I came in with the right diagnosis and core treatment, but Dr. Camilleri came through with the other things on the list, and it has made all the difference for me.
I do not have my life back on my own terms yet, but I am a world better than I was this time last year, and I see improvements sneaking up on me little by little. Today, I am happy to be alive and look forward (albeit impatiently) to being fully engaged in a productive, fulfilling life. I am grateful to have a partner to work with in turning things around, as the process is slow and often painful, with so many ups and downs along the way. I have enough to manage and worry about on this path without worrying about whether my doctor will understand what I'm talking about; how to get what I think I need in terms of treatment; if my doc will support me in trying new things, etc. Dr. Camilleri is a rare find, and I am grateful to be working with him.
I thank them for what they do on the front lines to pave the way for good medicine. They are ahead of their time, and that's always risky in the medical profession.